A one-year old Lavenham boy, who suffers from a rare immune deficiency, is fronting a campaign to encourage people to join The Anthony Nolan Trust’s bone marrow register, in the hope that one of them might save his life. Max Braybrook, who was diagnosed with Wiskott Aldrich Syndrome in March, needs a bone marrow transplant from a matching donor to give him the best possible chance of survival.
Now Max’s family and The Anthony Nolan Trust are appealing for people to attend a special session to join the charity’s bone marrow register, in the hope that his lifesaver can be found. The session will take place at Unit 28, Arc Shopping Centre, 2 Gosnold Street, Bury St Edmunds on Saturday 12th December between 10am and 4pm.
Max’s mother, Jaqui Braybrook, said, “Max’s only hope of a cure is a bone marrow transplant from a matched donor, ideally before he is 5 years old. Until then we have to live with his unpredictable condition and the risk of infections, stroke, malignancies including leukaemia and bleeding caused by typical knocks and bangs. By joining the register you could make the difference between life and death for our beautiful little boy, or for someone like him who is desperately waiting and hoping for that all important life saving bone marrow transplant. By reading this and joining the register you are giving us hope that we will find our donor”.
Charlotte Connolly, Donor Recruitment Manager for The Anthony Nolan Trust, explained, “70% of patients needing a transplant can’t find a matching donor from within their families. Max is one of them and is relying on the generosity of strangers to come forward and sign up to be a potential donor. Please come along to find out more - if you’re not a match for Max, you could save the life of one of 16,000 people in need of a transplant.”
